Feedings

By the time we took Audrey home she only ate through her feeding tube.  Due to the discomfort with her tongue she lost interest eating by mouth.  We would open her feeding tube button (which looks a lot like the valve of a beach ball), insert extension tubing, attach a large syringe, and poor a nutritional supplement called Nutren Jr. into her feeding tube.  This was like having a newborn all over again.  Audrey had to be fed a certain amount of food every 4 hours.  Eventually we adjusted this to every 6 hours.  Thankfully we did not have to wake up in the middle of the night and feed her.  Since she wasn't waking up to eat in the middle of the night before she had her feeding tube the doctors said we could let her sleep through the night.  She would get feedings at 5 am, 11 am, 5 pm, and 11 pm.

It wasn't uncommon for Audrey to fall asleep during her feedings.