Monday, April 2, 2012

Feeling Very Discouraged

We began to feel VERY discouraged about Audrey's tongue.  Everyone who saw Audrey noticed her tongue.  People were always staring and asking questions.  Although I knew people were just curious, I hated this.  I didn't like to take her out in public.  I was tired of people looking at her like something was wrong with her.  I know she technically did have something wrong with her, but to us she was perfect.  This is when I felt like God was teaching me to have empathy for other parents and children with special needs.

During this time, it felt like the doctors were doing nothing.  We were going crazy.  We knew this was NOT normal, but we seemed to be at a stand still with the doctors.  She was still getting sclerotheraphy treatments every 6-8 weeks, but it didn't seem like enough.  We put our trust in our doctors and PRAYED.  I wish we would have been a stronger voice for Audrey and demanded more answers or treatments.
Around 10 months is when her tongue begane to protrude from her mouth.  She was still able to keep it moist on her own, but it was often more comfortable for her to let it hang out of her mouth.

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