Riley Clinic Appointment

When we met with the team of doctors they mentioned trying a different kind of medicine with the sclerotherapy.  They also discussed possible surgery options to "debulk" Audrey's tongue.  They gave us some medication to try to help with the blistering/scabbing/bleeding on her tongue.  The result of this appointment was to return to Riley at a later date and have a sleep study and feeding study done to see if her tongue was causing any breathing and feeding issues.  Typically these kind of appointments take a while to schedule and usually aren't done together, but since we live 3 1/2 hours from the hospital they wanted to schedule them together so we would only have to make one trip.  They were also going to speed up the process since Audrey couldn't wait months to have the test done.  The doctors also mentioned at this time "worse case" scenarios.  They said worse case Audrey could end up getting a trach and feeding tube - but they didn't see that happening.  That was a relief at the time.